Posted November 12, 2013 By Faces
My daughter has SPD and ASD. Her diagnosis was like a punch in the gut. All the ideas I had about what her life might be like, what kind of personality she would have – all gone. It took weeks to get past the sadness, and I still sometimes have fleeting moments of sorrow when I think about it. But I was so wrong to mourn the loss of my ideas about her, because the reality of her is so much more, so much better.
She is brilliant. I mean, like, scary smart. She reads a book once, and she can remember it. And, that’s right, she taught herself to read, at the age of four.
She is so funny, too. She really likes physical comedy. People stumbling over things, bumping into stuff, always gets a little giggle out of her.
She sings all the time, is almost always humming a little tune – I love that so much! I enjoy singing myself, so I like that we share that trait.
But, I think most importantly, I adore how sweet she is. She loves to touch and snuggle and hug. It’s due to the fact that she’s a “seeker” apparently. But whatever the reason, it is so enjoyable to have such a physically affectionate child.
I think I look forward to seeing what her life will be like even more so now. The only thing I fear is all the obstacles she may face because of her SPD and ASD. But that is due to the ignorance and/or impatience of the world, not due to her perceived limitations.
Without a doubt, I am so lucky to be her mother. She has improved my life immensely, and I wouldn’t change who she is for anything.
Filed in Faces | Tagged: advocacy, awareness, DR LUCY MILLER, faces of spd, photo session, Portland, PORTRAITS OF A DISORDER, sensory processing disorder, SPD, SPD FOUNDATION, SPD Sensory Processing Disorder Special Needs
Posted August 9, 2013 By Faces
We are re-releasing our Support Faces of SPD T-shirt designed by my son, Dominic, who was diagnosed with Sensory Processing Disorder (SPD) in February of 2005.
In the drawing, Dominic depicts an SPD super hero asking for your help to raise awareness for SPD! With your purchase of this tshirt, you can do just that!
T-shirts are just $15 and come in all sizes!
Proceeds from the sales of these shirts will help us to offset the costs of the shoots for the remaining 50 faces of spd as well as prints of all 100 faces!!
Posted August 1, 2013 By Faces
October is National Sensory Awareness Month (yes, I know it is August). Our goal is to have this project or the shooting of the project finished in September so the images are ready for print and exhibit as of October 1st.
So, we are giving ourselves 50 days to photograph the remaining 50 Faces of SPD. These sessions will take place in New Jersey, Portland Oregon, Denver Colorado and a couple of other undetermined locations around the United States. We are excited to see this full project realized finally – it’s been in the works for a couple of years now. As we travel and conclude the shooting, we will be documenting the journey and behind the scenes action and perhaps some interviews on video for a compilation dvd.
We do not ask for our normal session fees for these shoots nor do we require print purchases, so much of the expense is out of our own pocket. To see this project fully realized, we need your help. For those who will be participating in our shoots, whether past or present, we will gladly accept donations. We have also launched an online fundraising campaign with outstanding perks for contributions at varying tiers. So, whether you are a part of the shoots or just wish to help be a part of the project, YOU CAN! The online campaign will only be live for 18 days so that we have the money in time to book travel for the remaining shoots.
Please share this post and our campaign with everyone you know! If you are interested in having your SPD kiddo (or adult) a part of this, please reach out to us!
Filed in News | Tagged: advocacy, DR LUCY MILLER, early intervention, faces of spd, PORTRAITS OF A DISORDER, sensory avoidance, sensory processing disorder, Sensory Processing Disorder Support and Awareness of Indian River County, SPD, SPD Sensory Processing Disorder Special Needs, SPDsupport.org, special needs, star center
Posted June 9, 2013 By Faces
Our goal for this project has always been to photograph 100 faces of SPD! We are about half way there. Our newest goal is to get this final fifty faces by the end of summer! We want all the faces photographed by the end of summer so we can get an exhibit ready for the beginning of October! The exhibit will feature prints of ALL 100 FACES!!!
This exhibit may likely be the largest SPD portrait exhibit ever. It will definitely be MY largest exhibit ever!! We are so excited about this!!!
We would love YOUR help to get the final fifty! Do you know someone diagnosed with SPD? Please share this page with them!
PLEASE HELP US TO CONTINUE TO PUT A FACE TO SPD!!!
Posted April 2, 2013 By Faces
Well gang, we are about half way to our initial goal of 100 faces. We have a few more shoots lined up, some more traveling to do, etc. To say we are excited about hitting this goal is an understatement! YOU can help us attain this goal and show your support by purchasing one of our SPD awareness bands.
The bands are $5 each plus s/h. We need to sell roughly about 160 of these to get through the next wave of shoots for Faces of SPD. The three states outside of the east coast area we intend to hit are Colorado, Ohio and Oregon. If you have a group, please reach out to them and talk up these bands. If you have a group and are in the areas just mentioned, PLEASE talk to your group. This will directly impact our ability to come to you!
Please consider making a purchase and showing your support. People need to know more about this disorder that affects 1 in 20 kids!
Posted February 8, 2013 By Faces
When Zane was born he was a happy healthy boy. We were young, but very educated parents. We researched everything we could possibly think of and interviewed pediatricians until we felt we found the one for us. So when Zane was 18 months old and I thought something might be going on with him, I trusted them when they told me that he was OK. Zane started walking at 18 months, which is right on the developmental delay line, and was always right on the line for having delays in his other milestones, but he always made the mark just in time. Then at 2 years old he started to struggle much more with sensory issues and getting physically violent over things like; having to wear jeans, loud sounds, and bright lights. Everyone told us “he’s fine” “he’ll grow out of it” or “he looks normal to me.” He wouldn’t always act out in front of other people which made it hard to get a second set of eyes at first. Zane would hold in his meltdowns in public and explode when he got home. As his mom I felt like I was so alone. Most professionals, friends, and family didn’t understand or validate my concerns but I knew with all my heart they were real! I continued to research and finally found an SPD web site. The more I read, the more I understood that this is what he is suffering from.
So we found an occupational therapist that specialized in sensory issues and had our son evaluated. We finally had an answer, I for the first time, felt validated. She agreed that he in fact did have sensory processing disorder with a dysfunction in all areas. Now this might sound weird, but I was grateful that he had a diagnosis and that he could get better! Then I quickly understood that our fight was just beginning. She informed me that SPD was not yet a medical diagnosis and treatment wasn’t covered under any insurance. Most people in her field and the special needs fields know that it’s a real disorder and these kids deserve all the therapies that we can throw at it as young as possible. We have been able to get him services and therapies through another angle right now and it has helped him so much. He’s such a loving and intelligent boy by nature. If SPD was a medically recognized disorder the future of these kids would be so much brighter. If SPD was recognized it wouldn’t be such a battle to get them what they so desperately need.
SPD IS REAL AND IT’S TIME THE WORLD KNEW IT!!!
Posted January 31, 2013 By Faces
I am sure at least most of us has had some “challenges” with our spd kiddos’ teachers at one point or another. For me, at the beginning of every school year, I reach out to the teachers and chat with them. I direct them to websites and discuss concerns. We also bring Dominic in to see the classroom and meet the teacher ahead of time. We have been fortunate that most of his teachers have been willing to learn and try things to make the classroom experience better for him. We did have some issues with Kindergarten and first grade.
While many of our kiddos may experience the same challenges in the classroom, there are many that don’t. What are your kiddo’s challenges? Do they have attention or distraction issues? Are they “space invaders?” How is your kiddo with social skills and cues? What systems or methods do you work with his teacher to implement to help make the day better or more productive for them?
What challenges have you faced with educators or the education system? What changes would you like to see? What do your teachers NOT know that they should know to better educate your child or make their learning and classroom experience more productive? Are there specific things that might help if they knew?
Share your thoughts and experiences with us. Please, make sure your comments are resolution oriented. Our goal with this post is to create a dialogue and look at best practices. We do not want this to be about ripping the school system, etc. I know it can be frustrating but this is not a vent or rant session. Let’s work together to bring about change, so keep that in mind when responding.
Posted January 24, 2013 By Faces
Are you looking for an opportunity to make a difference? Are you a student in need of community service hours? Are you an SPD parent, family member or service provider? We are looking to grow this project and need help in marketing, fundraising, online research, organizing exhibits, and more. We need your unique talents to help us continue to grow! We’re looking for volunteers to help us in the below areas:
1) Photographers – We are seeking professional photographers who can go out into the communities and help us create portraits. To maintain the image quality and integrity of the project, you must be a professional photographer!
2) Community Coordinator- Coordinators will seek out various organizations and service providers to strengthen and grow our community partnerships. The coordinator will also seek out exhibit opportunities as well as help spread the word and get more participants.
3) Fundraising - Help us develop fundraising opportunities, solicit sponsorship and create & implement events and exhibits.
If you are interested, please email us at brian @ facesofspd dot com!
Filed in Articles | Tagged: advocacy, DR LUCY MILLER, early intervention, faces of spd, PORTRAITS OF A DISORDER, sensory avoidance, sensory processing disorder, SPD, SPD FOUNDATION, SPD Sensory Processing Disorder Special Needs, special needs
Posted January 3, 2013 By Faces
Laid back was the words often associated with Kayla as a little kid. She was very laid back, went with the flow of everything. As a baby, she was tagging along in her carrier as her father went on calls as a tow truck driver. The sound and vibrations of the truck would sooth her to sleep almost instantly. As she got older, she was still a very laid back kid, but started to avoid crowds and loud noises. She also walked all the time on her tip toes. Her sisters always said she would make a great ballerina. She also was a very picky eater growing up and still is. She has always been a bright young lady. Now in High School, she is in honors courses. She still avoids crowds and parties, but she has learned how to cope with her SPD issues. She enjoys plugging into her Ipod and relaxing to her music.
Posted October 31, 2012 By Faces
My journey with SPD was discovered much later than most people. It wasn’t until a few months before my 26th birthday was I was informed that I had SPD. Growing up, I was your normal child for the most part. I did like to rock back and forth as a child. As I got older into my teen years, I had issues with depression and PTSD. I have always been pretty social, but there was a few things that I felt was always off with myself. It never dawned on me when my now 4 year old was diagnosed that I had SPD. I was diagnosed with ADHD as an adult, so I assumed my issues was brought on from that. It wasn’t until I was sitting with my 2 year old for a home visit and her OT and I was talking that it was brought to my attention. Being a mother of 3 SPD children, it does give me some great insight to what they struggle with. I have an amazing support net of family and friends. I have the most supportive husband I could ever ask for. He is the one always picking me up when I feel like SPD has knocked me down. I have meet so many people in the SPD community. Great friends and finally understand me and what I go through. I must say for an adult and mother with SPD, it is tough, but it is well worth it.