As some of you know, the goal of Portraits of a Disorder, is to raise awareness for Sensory Processing Disorder by putting a face or faces to it. SPD is a neurological disorder that affects 1 in 20 kids, like my son Dominic, but is largely still unknown. The medical community has yet to include it in the DSM which is a manual with a list of codes for various medical conditions, etc, that service providers use to code their billing for submission to insurance companies. Basically, what this means is that since there is no official code, that it is not recognized as a legitimate disorder and therefore, since there is no code, the insurance companies will not pay for services to help treat SPD. No code means it doesn’t exist – to them at least. On paper. I have been dealing with SPD, officially, for almost 7 years now. We, as a family, have cried, screamed and been pushed to every limit because of SPD. I can tell you as sure as I am typing this entry, SPD IS REAL!!! So, in order to get services, parents will either have to pay out of pocket for the various evals and therapy sessions or service providers will have to code it differently so parents can get insurance to cover treatment. This is what the parents of 1 in 20 kids have to go through to get their child the help they need to simply exist in life. Just to be able to have basic life skills. We are not talking college here. We are talking about these kids being able to eat properly, tie their shoes, cope with transitions, ride a bike, read, speak properly. Again, basic life skills that most of us take for granted.
Ok. Rant done and you get the point, I am sure. So this contest is designed to garner more support for this project I have started. Here is the skinny:
Contest ends October 31st.
We are selling chances to enter for $10 each. You CAN purchase more then once chance.
All chances will be entered into a large pot/box/something big and be randomly drawn the evening of October 31st.
Yes, you read correct, I will travel ANYWHERE in the US. So, lets make sure we sell these chances so I don’t lose money lol.
The winner must be available to pick me up from the airport and bring be back to it for my flights, if out of state.
ALL ENTRIES will be posted on a special page on this website as supporters. So, even if you do not win, you will still receive credit on this site as a supporter of the cause and will have my deepest gratitude.
**Valid entries must be received by October 31st!**
We will work with the winner to determine when the shoot will take place.
Please send your donations to:
39 Salem Rd
Schwenksville, Pa 19473
***TIP – if you have a group of friends or parents, etc, that may be interested, it may be worth your while to really pull your efforts and resources together for this as I will be happy to include shoots for up to 5 families on this trip.
THE HARD SELL… This is your chance to be part of a unique effort to help these amazing children and win a very special and unique photo shoot with an internationally published photographer! All of this for a meager $10. I know times are tight, but if you can spare $10 and the cost of a stamp, please help us out!!!
Thank you so much from the bottom of my heart!!!