Silas Orion Crumb
Silas was born December 15th…Full term
Silas was a VERY happy baby, never cried or fussed was always happy and content doing his own thing…people would often say “you don’t even know he is here”. It was true, he rarely cried and always seemed to be smiling. To this day he is always smiling.
On the flip side he had low muscle tone, and was a very hard baby to feed. More mill would run out of him mouth than actually make it into his stomach. He would ONLY eat foods that were soft like pudding, yogurt…he LOVED a dish of BBQ sauce..lol! He was late at every single milestone. EXCEPT smiling…lol! rolled over at 7 months, sat unassisted at 10 months, crawled at 14 months and did not walk till he was 23 months old.Talking happened about 3 years old….his first work was cookie and it took the speech therapist 4 hour long visits to get it out of him Silas started Early Intervention at age 13 months and received speech and OT, he did not get physical therapy because they thought he was strong enough to start walking but was just scared to take the plunge….when he turned 2 he started going to the IU preschool. He would hide under the tables and refuse to come out…lol
Something STRANGE happened around 15 months…Silas went from this always smiling happy baby to this angry, always wanting to sleep, banging his head off the walls, scared of ANY change….grass to gravel or gravel to grass, lines on the floor, almost everything! His constant sleeping worried the doctor enough to have a CAT scan done and that showed something odd…So they did a MRI and found that he had a TON of fluid in his Mastoids, We honestly have no idea how it got there because he NEVER had a single ear infection. The Neurologist said maybe it got trapped in there when he was forming in the womb. His hearing was tested and his eardrums were not responding to sounds because there was so much fluid in the mastoids…The Audiologist said to him it probably sounded like everything was under water.He got his first set of tubes when he was 1 1/2 and we were told he would start talking..he did not…those tubes fell out about a year later when he was 2 1/2 and they decided to put a second set in and remove his adenoids.
After his adenoids were out he was a different child….almost instantly!!!! before he NEVER acted hungry or interested in food and on the ride home he made the sign for eat, and all i had with me was goldfish crackers and he ate every single one, we were in disbelief! After that second set of tubes and the adenoid removal he was hungry all the time…he would still gag and puke on meats but he was trying all kids of new foods he had never tried before…it was amazing! There was talk of a feeding tube for him because he was VERY small for his age(still is) but this one thing changed everything for him!
His personality also changed, he went from a kid who was scared of everything and everyone to the COMPLETE opposite…not he has to be moving ALL the time, bumps and crashes into everything.He CRAVES movement and stimulation 24/7…he went from gagging just looking at food to trying to eat almost everything including non edible things …he still likes to explore things with his mouth…just last summer he caught a crayfish and could not stop licking it!!! GROSS!!
Silas has been to a million and 1 different specialists and no one can give me a clear answer…he is incredible smart and thinks WAY beyond his years and asks us questions my oldest son has not even asked yet..He wants to know where he was before he was born, and if he was alive or dead…..he is a mechanical thinker and wants to know how everything works…
So far his “diagnoses” have included
Mixed expressive/receptive language disorder
Sensory Processing Disorder
and one doctor said Silas is just a “mystery”
Kindergarten was rough..he can not stay focused for long, and had trouble just reciting the alphabet. he was always getting into trouble last year, i knew it would be rough for him. Even though he is VERY outgoing and not afraid of people anymore, he is very awkward socially, if he were to ask a child to play and that child said not now Silas would take it as that child does not like him and would get angry
This year he is in 1st grade and his teachers are noticing that once he looses focus its very hard to bring him back…and that his bad behaviors are starting back up. he had all his teachers fooled this year…he flashes that smile and they fall for it…lol! His gym teacher says (with a smile) that he is a wolf in sheeps clothing…its so true! Silas was getting his classmates in trouble for things HE was doing and the Teachers believed Silas….Age wise he is 7 but emotionally/socially he is more like 4-5
Silas is such a sweet silly, boy…he is the joke-ster of the family and it is impossible to not smile or be in a bad mood when he is in the room, he has a heart for people and he cares DEEPLY about everyone and everything, including horses… Silas has been obsessed with horses since he was a baby and insists on becoming a Jockey when he grows up. He has no fear, and that lack of fear can be scary. Last winter he decided to lay with his cheek in the snow for who knows how long…the result was a purpl/bluish cheek that he swore up and down felt good and did not hurt. He loves to climb HIGH in trees, to the top or as high as he can go and says he is a Cheetah, and this summer he jumped on the back of our truck as my husband was pulling out of the driveway..We just cant seem to fill his need for the constant stimulation he seems to crave.
Im so glad he started recieving services at such a young age…he has come so far in 7 years…I see changes every year…