Posted April 16, 2012 By Faces
Hiya guys!!! Let’s work together even more to spread awareness! Let us band together to get the word out there. What better way then with Faces of SPD wristbands?! You get to look fashionable while advocating for that sensational kiddo in you life.
The price of these are $5.00 each and the money goes back into the project. There are more areas we need to cover and various expenses with this project; so, we wanted to find a way to both cover these expenses AND do it by spreading awareness. These bands are a wonderful way to do both. At $5.00 each, they are an affordable way to make a difference and show support.
To order yours, email us at firstname.lastname@example.org. There is a $3.00 shipping charge on each order. Please show your support and order one. Consider getting a couple as gifts for family members so they can show their support for that sensational child in their life!
Posted April 14, 2012 By Faces
Recently, I had the wonderful opportunity to speak in front of a group of special education and some regular education students at Cabrini College. At the end of my first group, one of the professors asked the most poignant question possible and I thank my lucky stars that she had the foresight to ask it… “To these students who will be going into regular classes, etc, what is the best piece of advice you can give them regarding the kids?” THANK YOU!!!! My response was simple… Do not forget about the kids. I realize that there are politics, guidelines and red tape with the schools, but you need to make sure the child’s best interest comes first. Listen to the parents. We are not asking for trips to Disney. We simply want our children to have productive educational experiences and we want the school district to do their part to ensure that is happening. We want to make sure our child is not left behind.
This is NOT too much to ask. It is NOT too much to ask for the school system to do their jobs. It truly isn’t. It IS a shame that we have to fight the schools as much as we do to get simple accommodations for our kids just so they can succeed in school. Trust me, I do not think there is one parent who actually wished or is excited their special needs kiddo had it so hard and experiences greater struggles and obstacles then the rest of their classmates. Believe me, I don’t. I will be the first one to tell you, the extra challenges Dominic faces in school is NOT fun. It is NOT a pleasure cruise to have to go to all of these meetings, etc, JUST to make sure my son can fare well in school, especially since I have another child at home who also needs my time and attention. Nope. Not my idea of paradise at all. However, this is what it is and this is what I must do as a parent. I’m not a super parent. Just a parent. As a parent, you do ALL that you have to for your child(ren).
So parents, I ask you… What is it that YOU would like your school system, teacher, etc, to know about your child. What could they be doing differently to provide a better learning environment for your kiddo? Let’s hear your thoughts…
A dad fighting for his kid.
Posted April 12, 2012 By Faces
Raising Kheenan is wonderful, challenging, heart-breaking, frustrating, and exhausting. He is almost four now and loves to play with his brothers, ride his bike, and “go very fast” on our boat. He is silly and funny and loves to pretend he is a super hero. From very early on we started noticing things were different for him and he was soon diagnosed as being sensory avoidant as well as a sensory craver. He smells everything and everyone and he still puts all kinds of items into his mouth trying to seek input. We have to be careful when we are out and we pass by a cork board because he will discretely pull off a push pin and put it into his mouth. I cannot leave hand sanitizer around because he will ingest it. Disinfectant wipes are stored away or else he will suck on them. We are constantly worried about his safety and the safety of those around him. On one side we struggle with his inability to feel pain so we are often finding him with blood, cuts and bruises with no explanation. He will climb to the highest spot and jump, climb over the tops of banisters, and ride his bike into large rocks. However, on the other side, he doesn’t like certain feelings and will panic if he feels his fingers are sticky or if you try to hug him when he isn’t ready for a hug. He is also a sweet boy with amazing verbal skills and will make you smile as you watch him play. But the reality is that his world is constantly teetering between feeling good and feeling unhinged.
If you have a child with SPD you know that there is a certain cry that they have that will break your heart in an instant. It is not the sound of a frustrated toddler or the sound of irritated siblings who aren’t sharing. It’s the sound of a wounded soul who feels confused and frustrated with his own body. He will often become very violent and angry when his body “isn’t right” and despite his verbal strengths becomes unable to express his needs. Eventually, the anger subsides and what’s left is a sobbing, confused, deeply sad boy. I can only imagine how angry I would feel if my body was constantly failing me For us, SPD is a family disorder because every day we are all impacted by its challenges. My dream for Kheenan is that he simply finds peace in his world and that he finds understanding with his own body. I am certain that we will have many more hurdles to overcome, but I know that by continuing therapy with loving and patient teachers and therapists he will have a bright future ahead of him.